Wednesday, 15 April 2015

Trying not to Panic!!


Hello everyone,

As some of you have already seen as I begged Cat for prayers yesterday we have problems in our neck of the woods.

Our darling daughter in law was born with a rare  not very well known syndrome which at birth showed itself as a birth mark encompassing her leg. As she grew up this turned into  some form of (in her words) elephantism. Not as bad as it sounds but one leg is bigger , chubbier than the other.

BEFORE they tried for the baby they asked  for advice from their doctor. No problem he said , go ahead....................... These are well educated thirty somethings, not risk takers, just seems so unfair

Halfway through and things are not so simple. She is under a serious threat of dvt and is now injecting herself every day with god know's what to help prevent it. As a teenager she was told basically to get on with it, they couldn't do anything about it so she and her family have just sort of ignored it .
Now of course the leg is getting bigger and they are concerned about blood flow and the baby's growth.  The other worry is now whether the baby has inherited the same condition. It came out of now where to her though and doctor's opinion is unlikely.
To be fair her baby doctor is brilliant and she is being checked all the time. My son is so worried, although she seems to be taking it in her stride. When we think about the long haul flights she has taken and never been told by anyone no matter what she asked that it wasn't okay .....

Son thinks they will deliver early and so we are just taking one day at a time, 22 weeks so far.
Baby is okay so far and she is plodding on. The baby is an uncooperative soul though, three scans in and it refuses to show it's bits!!! Trying again on Monday's scan to find out boy or girl. So far it's turned round and crossed it's legs!!

That's my whining over, please just spare a thought for us today and our long awaited grandbaby.

I won't leave this post up for very long as I feel it does identify us all a bit but I did want to ask for some support right now. Thank you all so much
much love
             Jan,xx

48 comments:

  1. Oh Jan, thank you for sharing and letting us know how we can help. I understand your worry. Happy to hear the baby is doing well and hope he/she is more cooperative with the next scan.

    Thinking of you all and sending positive thoughts, prayers and lots of ((hugs))

    Roz

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    1. Hi Roz, thank you very much, we are all so excited to find out the baby's gender.
      love Jan,xx

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  2. Jan,

    I saw Cat's post and was trying to find your email address to ask if there was a problem but couldn't find it.

    Thank you for letting us know and course we understand how worried you are.

    Sending love and positive thoughts. Thinking of you all.

    Love and hugs,
    Ronnie
    xx

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    1. Hi Ronnie, thankyou. It's been quite hard, we have all waited so long for this and it's so very stressful for the kids
      love Jan,xx

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  3. sending love, positive thoughts, healing energy, and hugs your way...thinking of you and your family

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    1. HI Terps, thanks a lot, fingers crossed here
      love Jan,xx

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  4. Prayers! Legs crossed? My guess would be a little girl.

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    1. HI there, that would be nice after having two sons although if it is a girl I worry that she too will have to go through this someday..
      love Jan,xx

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  5. Jan,

    Sending you lots of prayers and love to you and your family. I can imagine how scary that is for you, glad to hear the baby is doing well ,and I hope the medication helps prevent any clots. Thinking of you!

    Hugs

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    1. Hi Jennelle, Thank you, I think dil is being very brave, she is not keen on the injections but plodding on resigned to it all. She is liking all the extra scans though. She feels lucky to keep seeing little one!
      love Jan,xx

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  6. That's not whining Jan, it's sharing your fears with your friends. Sending love and hugs to you all.

    Rosie xx

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    1. Hi Rosie, nice to speak to you, thank you. I don't like to moan on but sometimes you just can't help it!
      love Jan,xx

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  7. Jan,
    Will be praying for your sweet family!
    Megan

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    1. Hi Megan, thank you very much, it is much appreciated.
      love Jan,xx

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  8. Sending lots of positive thoughts your way!

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  9. Sending positive prayers and thoughts your way. Hugs

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    1. HI Sunny, thank you, we have everything crossed here, it just feels like a long way to go
      love Jan,xx

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  10. Sending lots of prayers, warm thoughts and healing energy to you all, Jan! :) Must be scary but at the same time it sounds like things are under control and that the docs are taking good care of your DIL and sweet baby. I am SO glad!

    Thinking of you and sending lots of love your way! Hope that your little gymnast grand will settle in for a couple of seconds so that those bits can be identified! HUGE HUGS!

    <3 Katie

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    1. HI Katie, I think the kids are happy with the medical help, my son is definitely the most scared, she is very philosophical. Oh I can't wait to find out what it is!! I hope your family is okay, especially mum
      love Jan,xx

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  11. My thoughts and prayers are with you. Pregnancy can be a stress without the extra complications. I inherited a clotting disorder from my father, which increases the risk of DVTs and had to inject after the birth for several weeks. I've never developed a clot and most of what I do is precautionary - I always wear stockings during flights etc and jiggle about alot!
    big hugs
    DF

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    1. HI DF, oh gosh that sounds scary. She is injecting from now until the birth I think, bless her, she is not keen:(. Frankly I don't want her to ever get on a plane again!!
      love Jan,xx

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  12. Jan, I'm so sorry to hear all of this. It should be a time to be celebrating and not stress. I'll be sending prayers to you and your family. Especially that new little family member.

    As far as the little one being shy....according to one of my girls, that means it's a girl, lol. She's convinced only little girls hold out their identity. Little boys spread their legs and show it all. Crazy enough it's proved true with all of our grands.

    Hugs,
    Clara

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    1. Hi Clara, thank you. I quite fancy a girl after two boys but really and truly I just want everyone here in one piece!
      love Jan,xx

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  13. Jan, hugs and hugs, I wish so much that all will be good for your daughter in law and her baby. The little one has already made the first 22 weeks and is ok, so every day will add to a happy ending, even if she maybe comes a bit early. And I think Katie is right, it sounds like the doctors do take good care of your daughter in law and your grandbaby. I am so sorry about the worries you will have till baby is born, and simply wish for you to have many little positive news that show all will be ok for your daughter in law and for baby. I hope and pray that everything will be alright for yours and for you.

    Oh and I am so sure your grandbaby will be a beautiful girl too. Legs crossed and creating a mystery about herself sounds like it. :) Jan, thank you for sharing the news; sending positive thoughts and prayers. I am thinking of you and hope all will be good.

    hugs and love

    Nina

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    1. Hi Nina, Thank you darling, We are back home now and the three hours away that we live seem like another country right now! Dil is going to work tomorrow. They are not very cooperative but she is now just doing the best she can for the baby. After it is born she will stay at home, I don't think she will work much longer, she is in an office and sitting for long periods is bad for her now. I think she has been worried about all the time for hospital appointments and checks but needs must. Hope you are okay now after last week, love to Tilda
      love Jan,xx

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    2. Hi Jan, I hope you get some rest too! It is not nice that they are not trying to make life for your dil a little easier at her job. But when this sitting job is bad for her and her baby maybe she really should stop this (the sooner the better). I am so sorry that you have to worry loads right now, and I hope so much all will be good for your dil and the baby. Thank you, I am so much better again too (but the last week was awful). I'll kiss Tilda from you tonight.
      hugs and love

      Nina

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  14. Lots of loving thoughts, prayers and blessings are winging you way. I am so sorry about all of this and will keep checking with you on your dil's progress.

    As I told you earlier, I have a very strong feeling this is going to be a little girl. But the main thing is that both mother and baby keep healthy.

    Many hugs
    Ami

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    1. HI Ami, just emailed you. have just spoken to son, he is a bit down but dil remains a cheerful soul plodding round chatting to her tummy!!
      love Jan,xx

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  15. I hope you know and can tell your son and DIL that they have the love and prayers of may that are strangers to them. Most of us here are moms, so the Mama Bear Prayer Warriors (MBPW) will be going to town for them. Keep us informed as you can. We'll be here.

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    1. Hi PK, thank you so much, I feel calmer today, just hoping all will be well
      love Jan,xx

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  16. I will keep you DIL and your entire family in my thoughts and prayers. Amyee

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    1. Hi Amyee, thank you very much we are very grateful
      love Jan,xx

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  17. Thinking of you all and sending prayers. Know what it's like going through scary medical times, having one here too! It is so good to have the doctors on side and on top of things though.

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    1. HI Janey, thanks, hope everything will be alright for you too
      love Jan,xx

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  18. Keeping all of you in my prayers.....my niece is pregnant and has a non cooperative also....no matter what they do...always in the wrong position to give us some news......Hang in there....
    hugs abby

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    1. Hi Abby, thank you, awkward babies, just a split second is all it would take to let us in on the secret!!
      love Jan,xx

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  19. Jan I am praying hard! I know that prayers and positive thoughts help! Take care of yourself too!

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    1. Hi Minelle, thank you, I have heard from Ami and know you are suffering too at the moment, my thoughts are with you
      love Jan,xx

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  20. Jan, you and yours are definitely in my thoughts. On one hand, I can't believe doctors would be so flippant, on the other, thinking of all the trouble I have had with my back and never getting any help, I guess I can.

    Thinking of you.

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    1. HI Julia, I know we can't really blame the doctors but oh gosh it does make me angry when they were so dismissive of something they clearly knew so little about
      Love Jan,xx

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  21. Dearest Jan,
    It's so hard when those we love are in some sort of medical distress - especially when there are a lot of unknowns and a precious little baby involved. I'll be praying for your little family and the safety of your DiL and grandchild.
    hugs,
    Cali

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    1. HI Cali, thank you so much, we are just taking it all one day at a time now, out of a lifetime this is only a few weeks of worry
      love Jan,xx

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  22. Hey Jan...continuing to send prayers and healing energy for your DIL and grandbaby as well as prayers of positive energy for all of you. My blog is available to you anytime you need a request broadcast...just pop me an email or have Ami do it if you are busy.

    Hugs and blessings...
    Cat

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    1. Hi Cat, thank you for everything, I am overwhelmed with all the support we have had from Blogland. It is easing the way. Hope you are well
      love Jan,xx

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  23. Jan, Please know you are in our prayers. It is so hard to stand by and watch while those we love are in any possible danger. The threat to the baby, real or imagined, can be almost paralyzing. Our prayers will be for the safety of your family and the beautiful , if somewhat shy, baby. Love, Ladybrittany

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  24. Jan, Please know you are in our prayers. It is so hard to stand by and watch while those we love are in any possible danger. The threat to the baby, real or imagined, can be almost paralyzing. Our prayers will be for the safety of your family and the beautiful , if somewhat shy, baby. Love, Ladybrittany

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    1. Hi Brittany, welcome to my blog and thank you for your good wishes. Today there is another scan, we are hoping to find out girl or boy today. It's very exciting!
      love Jan,xx

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